Documentation about the National Childhood Cancer Registry (NCCR) databases in SEER*Stat is available below and includes a database dictionary to describe all the variables as well as a summary by SEER*Stat session type of the main characteristics of each database. Read more about the NCCR and other available NCCR data products on the NCCR*Explorer website.
Documentation of NCCR Variables
Dictionary of NCCR Variables: Excel (XLSX, 19 KB) or PDF (PDF, 116 KB)
Lists all the variables in the NCCR SEER*Stat databases with the following information: NAACCR item number, description and definitions, and category.
Database Details:
- The NCCR data are based on the NAACCR CiNA data submissions, not SEER. Case counts will be different between the NCCR and SEER Research databases due to differences in tumor reportability and submission dates.
- NCCR databases are not available in SEER*Stat case listing sessions, meaning it is not possible to view individual records in the data.
- NCCR participating registries are limited for this release.
- Geographic information is not available in the NCCR data. Statistics may only be calculated for all registries combined for confidentiality reasons.
- The NCCR data is made available through SEER*Stat for users who have access to the SEER Research Plus Data.
NCCR Databases by SEER*Stat Session Type
The following database is available is the SEER*Stat Rate, Frequency, and Survival Sessions.
NCCR Incidence Data (ages 0-39), 20 States and Seattle, Dec 2023 NAACCR Sub (1997-2021)
- Includes cases diagnosed from 1997-2021
- Covers approximately 59% of the population aged 0-39 (based on 2021 U.S. populations)
- Rates are available by expanded race (White, Black, AI/AN, and API) and Race and Origin (NH White, NH Black, NH AI/AN, NH API, Hispanic)
- Contains one record for each of 1,418,577 tumors
Geographic areas (registries) covered
- California
- Colorado
- Connecticut
- Georgia
- Hawaii
- Idaho
- Illinois
- Iowa
- Kentucky
- Louisiana
- Massachusetts
- Michigan
- Missouri (1998-2021)*
- New Jersey
- New Mexico
- New York
- Seattle
- Tennessee (2003-2021)*
- Texas
- Utah
- Wisconsin
*For more information on NAACCR certification standards see NAACCR's Registry Data Fitness for Use By Data Year (1995-2021) (XLSX)