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SEER Inquiry System - Report
Produced: 07/31/2025 6:59 PM
Question 20180013
Inquiry Details
References:
2016 SEER Manual, 5-7. Reportability Section
Question:
Reportability--Brain and CNS: Are tuberous sclerosis cancers found in the brain reportable? See Discussion.
Discussion:
I have searched ICD-O-3 for a histology listing but could not locate. I also searched the SEER Inquiry database for possible answers, but none were found. The patient underwent a pediatric MRI of the brain of which final impression was: 1) Subependymoma nodules, cortical tubers, and SEGAs are seen bilaterally consistent with tuberous sclerosis.
Answer:
SEGA (Subependymal giant cell astrocytoma) is reportable if diagnosed in 2004 or later. Tuberous sclerosis complex (TSC) is not a neoplasm and is not reportable. SEGA is a neoplasm that commonly occurs in TSC patients.
Refer to the reportability instructions on pages 5-7 in the SEER manual, https://seer.cancer.gov/manuals/2016/SPCSM_2016_maindoc.pdf
