A signed SEER Research Data Agreement form is required to access the SEER data. You may review the language of the agreement below (this cannot be used to request data). You will receive a personalized agreement when you request access to the data.
It is of utmost importance to protect the identities of cancer patients. Every effort has been made to exclude identifying information on individual patients from the computer files. Certain demographic information - such as sex, race, etc. - has been included for research purposes. All research results must be presented or published in a manner that ensures that no individual can be identified. In addition, there must be no attempt either to identify individuals from any computer file or to link with a computer file containing patient identifiers.
In order for the Surveillance, Epidemiology, and End Results Program to provide access to its Research Data File to you, it is necessary that you agree to the following provisions.
- I will not use - or permit others to use - the data in any way other than for statistical reporting and analysis for research purposes. I must notify the SEER Program if I discover that there has been any other use of the data.
- I will not present or publish data in which an individual patient can be identified. I will not publish any information on an individual patient, including any information generated on an individual case by the case listing session of SEER*Stat. In addition, I will avoid publication of statistics for very small groups.
- I will not attempt either to link - or permit others to link - the data with individual level records in another database. This includes attempts to link to any other SEER data.
- I will not attempt to learn the identity of any patient whose cancer data is contained in the supplied file(s).
- If I inadvertently discover the identity of any patient, then (a) I will make no use of this knowledge, (b) I will notify the SEER Program of the incident, and (c) I will inform no one else of the discovered identity.
- I will not either release - or permit others to release - the data - in full or in part - to any person except with the written approval of the SEER Program. In particular, all members of a research team who have access to the data must sign this data-use agreement.
- I will use appropriate safeguards to prevent use or disclosure of the information other than as provided for by this data-use agreement. If accessing the data from a centralized location on a time sharing computer system or LAN with SEER*Stat or another statistical package, I will not share my logon name or password with any other individuals. I will also not allow any other individuals to use my computer account after I have logged on with my logon name and password.
- For all software provided by the SEER Program, I will not copy it, distribute it, reverse engineer it, profit from its sale or use, or incorporate it in any other software system.
- I will cite the source of information in all publications. The appropriate citation is associated with the data file used. (Please see Suggested Citations on the SEER*Stat Help menu.)
My signature indicates that I agree to comply with the above stated provisions.